When it’s something outside of our control it’s okay to whine. I’m sorry you’re suffering Glenna. And with invisible illness it usually goes unnoticed. People get more sympathy for a common cold haha.

I highlighted a bunch but I really should highlight the whole article. You’ve summarized the experience so expertly I can tell you’ve really struggled with it.

I’m on methotrexate and enbrel for my chronic pain, arthritis, etc. It’s not the best, but it’s all I’ve found to work…and the state you’re in without treatment with the constant pain, stiffness, and fatigue is not sustainable.

I too wish we understood more about it.

I’m going to make another attempt at diet changes to see if it helps as well. I don’t want to be a “walking pharmacy” anymore. The side effects of the meds do take a toll, though not in the same manner as the disease. More being prone to sickness because of compromised immune system.

Anyway, I hope you’re able to find relief soon, Glenna.